Friday, November 30, 2007

Three Years

Three years ago tonight, I was oblivious. Well, I shouldn't say oblivious, but I certainly never knew how the next day would change our lives. I was a little concerned, since the neurologist appointment I had made for Brian was being rescheduled at the last minute, and my friend Jocelyne kept telling me December 1 is a bad luck day. But still. I was oblivious. What, me worry?

So the appointment changed everything ... Arnold Chiari and Syrinx are now household words for our family. My own vocabulary has grown tremendously, to inlude such terms as tethered spinal cord, pseudotumor cerebri, foramen magnum, and dura mater. Words that three years ago I would have shivered at the mere mention of one syllable. Now I read the message boards almost daily, trying to be sure the rug is never pulled out from under me again.

Surely, there were good experiences with the bad. We met many smart and world reknowned neurosurgeons. They took my calls, and called me back on weekends! The weeks after the surgery were strangely serene; with our family sort of all holed up in the house as if there were no world going on outside. Under different circumstances, it would have been beautiful. We played mancala, Sorry, Parcheesi, BusyTown, checkers, and (God help us) Pokemon Stadium for countless hours. We watched movies. We sat around.

But mainly, I worried. I worried beginning December 1st. I will never forget the date or the words, " I am not worried about (insert reason for visit), but I am very worried about (insert new symptoms, of which previously blissfully unaware)" nor will I forget "he needs an MRI of his brain, and an MRI of his c'spine" (c-what? oh yeah, that's another part of my new vocabulary, along with t-spine, lumbar, and medulla)

So the worrying began December 1st. After the MRI it did abate briefly. Only until I found out that the doctor had not called back not because it was normal, but because he wanted to see for himself the abnormal. And when he did return my call, again there were words I will never forget, "both of the things I was looking for ... (I swear he paused for effect) ... appear to be there."

This was several days after December 1, but I don't recall any dates other than December 1 for that part of the story. The month of December runs together. I remember we left the neurologist, and we went to the mall. Brian sat on Santa's lap, and his faith in Santa was so strong, that, even thought he was nine and in fourth grade, I truly feared he might not see 10 and fifth, and I was determined that he should hold onto that magic for another year. It was so bittersweet. He was big, and yet he was so small. And his teeth were a God-awful mess. That, too, I remember.

I remembered him sitting on my lap on a Disney transit bus, just weeks before, saying, " I can't wait until I have my own kids" so he could take them to Disney World. Would he ever have his own kids, I wondered now? That day kept haunting me. The doctor was no help. All he could say was, "every time a child has an MRI, it's scary."

After we saw Santa, I remember that we drove home. It was a surreal trip, between the news and my new anxieties. All of these years, being accused of hypochondria and never having been given anything this terrible to face: brain surgery. But I didn't even know that yet. It was still the unknown. In fact the unknown was so alarming, that when I found out that it meant brain surgery, that was like a huge blessing.

I did take Brian back to school that morning. On our way, trees were literally falling onto the roadways. It was very rainy and windy, and we were on a particularly winding road. A tree branch snapped off and landed on a power line. We were almost directly underneath it at the time. I just remember the entire day as if it happened only yesterday.

And I hope to never experience a day like that again.

Thursday, November 29, 2007

K-Cups to go

Amidst much fanfare and anticipation, I finally bought the Keurig coffee single cup coffee maker. At the risk of appearing to be wannabes next to my sister's fancy coffee and espresso at the touch system, the ease and appeal of one cup at a time were too much to resist. No clean up? You know that is for me.

So, $149 with $30 instant rebate; three packs of K-cups at $9.99 apiece, less $5 for the purchase, and Brian and I were set to install the machine. As we followed the directions, he could barely contain his glee. Brian can hardly stand surprising people; in his eloquence, he describes the feeling: "I always get really happy when we do things like this" as he bounces his shoulders around.

We prime the machine. We brew the first cup of water. Then we brewed some coffee. What's this? With milk added, it's the color of sand on the beach! Maybe I misjudged the mug size, put in too much milk.

We try the hot cocoa. Brian says it's "ok". The happy feeling is fading. I smell it, and it reminds me of the hot chocolate I used to get at Penn Center Rink when we'd go ice skating in the winter.

But, there it is, in the kitchen, and I have to admit, it is beautiful, and easy to use. What a concept! Kevin is happy. But then he makes coffee. Weak again. He normally fills a travel mug. This morning he put it in the travel mug and it was filled to 1/3 or 1/2 of the capacity. At least it will not keep him up on the bus ride. I guess he could do a double shot, that makes it about the same price as a cup of Starbucks.

I remember my post college days. I'd brew the coffee in a little percolator and drink half. The next morning, I'd pour the remainder into a small saucepan and heat it on the stove. That was good coffee.

My strategy for tomorrow: coffee in a tea cup.

Sunday, November 25, 2007

Washer/Dryers of the Rich and Famous

It finally happened!! It really did!! Our dryer began to sputter into its last phase of life, and at last, we were able to replace it. I thought that this would have happened a year ago, when we first moved, and our seller had threatened to take out the old mismatched dinosaurs that occupied the narrow strip of space called the laundry room in our new house. To the rescue was our superhero realtor, who stepped in and paid the $300 which was offered as the purchase price.

And so they limped through another year and a few months, the washer dropping rust into load after load of clean clothes, if the lid was closed too hard; and the dryer always smelling faintly of gas for no apparent reason other than: it stunk!

Black Friday was on our side, and Sears had all their home appliances on sale for 20% off. After what was an amazingly simple process of buffering between Bob the sales guy and Kevin the brain-dead-husband who had to come along to approve such a major expenditure (about half of what I make in a year, I think, is that wise economics?) we agreed on the larger model Kenmore without the steam option. The steam option = extra work for more money. No thank you. I will keep the stains. At half my salary, it's got to still be better than anything we have had in the past.

And also amazingly - the next day they arrived at 9:30! I was able to do all the laundry which had piled up. Approximately five heaping, overflowing laundry baskets full. AND the washer and dryer are stacked now. Which alas means I will need a stool to reach the dryer controls and the back of the dryer drum without pulling out my shoulder.

But the good news - we can hide the laundry behind them now that there's room :-)

Thursday, November 22, 2007

It's Thanksgiving

People singing ... it's Thanksgiving ...

This is an excerpt from a horrible song. It's a song that the kindergarteners sing, every year, and every year they pratice it over and over. If you are fortunate enough to hear this, you become permanently associated to the song. The mention of the holiday will send your subconscious voices into the reprise, "people singing ... it's Thanksgiving ..."

Of course I can't remember a single other word. Not too different from most of the kindergarteners! And this year I thought I was OK. I had the song in my head for a day or two, but it wasn't too bad. What happened? As I walk into the All Purpose Room, I see a line of pilgrims. And what are they singing? Yep.

So we have a turkey. We have a turkey, cranberry sauce, potatoes, and broccoli. I forgot to get the apple cider, but I didn't forget the Kendall Jackson Chardonnay. Lucky for us, we were out of coffee and Kevin had to be dispatched for an emergency coffee run, which turned into an hour long shopping trip. (Note: have not yet had coffee at 9am)

I also forgot to get salad. Then I thought, with turkey, cranberry sauce, potatoes, and broccoli, do we really need salad, too? The reason I forgot is that the Doll has normally brought salad. Her interpretation of bringing salad is to bring the lettuce in large shreds, and some cut up accoutrements, such as cucumbers and maybe some tomatoes. These ingredients arrive as I am about to consolidate everything else in the kitchen, and I then must find a bowl and mix and ready the salad. In print, it doesn't sound as frustrating as it actually is. If someone is bringing salad, I envision a lovely spread of greenery offset by colors, perhaps with some feta cheese and maybe croutons, covered with a lighgt bit of saran wrap. Like at the pot-luck dinners.

But this year, there is to be no disassembled salad.

But. There is coffee. I smell it.

Monday, November 19, 2007

A Random Blog

It's been a while since I posted, mainly because my life has been really boring and suburban. With swim team practices, cats, and shopping, just nothing has really piqued my interest.

Although I suppose there are many things. Let me start with the anti-bullying campaign that the schools have imposed on the elementary school students. These are the same students who in first grade come up to me and say, "Mary and Lisa say they're the Queens of the world, and nobody else can be it."

Yet we'll bring the entire school into the All-Purpose Room and give them the idea that, in middle school and high school, if you are being bullied in any way, this will all be ok in the end. For example, if your middle school friends no longer want to be your friend, you can tell on them! Isn't that the greatest thing? You can go to the guidance counselor and say, "Mary and Lisa think they're the Queens of the world, and nobody else can be it. "

Well, the problem is that something happens to the brains of these kids who draw those anti-bullying pictures, and make the books that describe the different types of bullies and how to handle them. It's like that part of the brain disappears and they all become mean, evil bully-monsters.

So the kid who bullies discreetly, but then taunts the fat kid until the fat kid beats him to a pulp in school, he becomes the victim, just like that. Of course, the fat kid is wrong. But the fat kid was also provoked. And fat kids will always be provoked, no matter how much anti-bullying is taught at the elementary level. The reason? Only the kids who would never be the passive-aggressive bullies are the ones who are really soaking that in.

Sad but true, and history will repeat itself, no matter what they say.

I was going to go on about other things, but I won't. My other gripe of the week is substitute teaching. But that's for another day.

Friday, November 9, 2007

Middle School Madness

Today was not a noteworthy day, but in the spirit of my new viewerless blog, I wanted to enter anyway. The best news was the news of the guy who saw a beautiful girl on the subway and wanted to know who she was. By the time he worked up the nerve to talk to her, she had gone. So he created a website with a sketch of her and a description, and one of her friends responded! They went out last night for the first time and had plenty to talk about. They were on the news show this morning. She is from Australia. It was very cute.

But our lives were not so cute. Why are middle school kids allowed to wander free? Are they so rude, so stupid, or just so inconsiderate as to make an excuse like, "I can't come out" and then wander by with half a dozen or so friends to go and play exclusively without Brian? Is it the chiari? Is it the no-tackle policy? Or is it something else that has made this elite little group suddenly decide to ostracize my son? Perhaps we may never know. This is uncharted territory, and it's not in the handbook. Instead, we went to visit the cats at the Humane Society. We found two of the siblings of our new kitten, Rusty, were still there. Which means that someone must have taken (we hope!) the other one we were considering. If we didn't already have so many, I would have come home with those other two on the spot!

Three days of the weekend remain! Sometimes I don't know what to do with all the time, and then it's gone.

Thursday, November 8, 2007

Have Passport? Maybe.

We had an appointment today to get passports for the kids and me. The appointment was for 10 AM. We set out for the post office only to be greeted with the same nasty shrew who gave me a hard time when I had to do a mass mailing of directories for the middle school. Perhaps she is upset because she can't find a good diet plan or hairdresser. Some people should really rethink their career choices.

Fortunately - the shrew doesn't get involved with that. (All she really does is sell stamps and tape boxes, don't ask her for anything outside of these tasks) The only remaining knowledgeable person helped us instead.

Everything was going along swimmingly until, of course, Brian's application. His birth certificate, issued the most recently of all of them, did not list any parents!!! Megan, born two years earlier, in New York, had it all. So, thankfully...we only had to drive over to the next town to get the updated version.

After quite a comedy of errors involving moved offices, parking roulette, and disconnected phone numbers, we finally found the office. $10 later, in four to six weeks, we can leave the country!!!

(as if)

Wednesday, November 7, 2007

A Victory for Idiots

Isn't it wonderful? Apparently, up till now in New Jersey, idiots have not been allowed to vote, under constitutional law! But that has all changed. Any idiot can now vote. Unfortunately, I think most idiots have slipped through the cracks and were either voting, were on the ballot themselves, or both.

And yet there will be no stem cell research. Always a concern when you're actually facing a neurological condition. I guess $450 million was just too much to spend in support of Michael J. Fox. I'm a little disappointed, I know that some people have had amazing results with stem cell transplants for certain conditions. Of course, this had to be done in Belize, which most of us can't afford, even in a last-ditch effort to prolong our lives.

So those were the main points of the day. Other than preserving green acres, which thankfully is important to anyone who has ventured out onto the Garden State Parkway and witnessed the sprawl.

My full day sub job turned into a half day job last night. After showing up at school, I found I was barely needed...most of the meetings had been cancelled and they no longer needed coverage. As my ears are always open, I overheard the secretary on the phone saying they were shorthanded for classroom aides. I volunteered and was switched to a full day job with a multiply-disabled child. A whole different day, it makes you very happy and very sad all at the same time. These children are so happy with such little things, it's very cute until you remember that for many of them, they will remain exactly at this level for the rest of their lives.

And they will never be able to vote.

Tuesday, November 6, 2007

Election Day Madness

So now it is election day, and the schools in our town are closed. I didn't notice the usual push to get the parents out to vote this year, and with the rainy weather and boring ballot, there may be an even less-than-poor turnout. Once again we'll head to the polls and vote on who can best raise our taxes and complicate our lives. I wish I knew who was responsible for starting construction on the three roads that I need to use to get to work, all at once, I'd be sure to cast that vote in the other direction.

On with the saga of Brian and school. How does a 12 year old brain even function? How do 12 year olds even survive? I wonder daily if this is a function of chiari malformation or testosterone, and I don't know how to find out. There is just a total lack of any organization or thought process at all. I'm going to have to figure something out.

Otherwise we expect an uneventful day. We're off to the dentist for an orthodontic adjustment and Megan's first filling. She is terrified, and it reminds me of mine. I remember he used no novacaine, and it HURT. I can still feel the pain from the drill from 30 years ago. Or maybe that's because I feel it every time I get a filling. Hm.

Hopefully, it will stop raining. Maybe we can go car shopping. I am convinced that one day my brakes will just stop working. Most of the time they feel like it's going to be at that moment. I'm so tired of guzzling gas in a thirsty V8 for the five times a year that I actually USE all seven seats. I've always wanted to just drive around in a little Honda Accord. Although I have to admit I felt much safer in my Explorer when the Asbury Park Press van nearly creamed us on the road to Princeton on Sunday.

Hopefully, I am doing this blog the right way. I'm such an inexperienced blogger.

Monday, November 5, 2007

My First Blog

Well, since I don't have a life, I decided to have a blog. Today is the first day of my blog so I will list the major concerns of my life today:
1. This weekend's swim meet. It was the worst ever. We spent about 15 hours in the DeNunzio Pool at Princeton University for what I have to say was worse than any meet we have been to in our seven years of attending swim meets.
2. Puff Kitty. Not only did a first round of wormings for all fail to cure Puff of her roundworm infection, but now she is in heat. She isn't due to be spayed yet according to our vet. She is about five months old.
3. Brian's truancy from school. I got a letter that he has been absent four times. Once, he ate corn on the cob and went to the orthodontist. I picked him up at 11:30. He has to stay till 12 to get credit for the day. The next time he ripped off half of his thumb when he fell off of his bike. I took him to the pediatrician and brought him in at 1:15. Again, he won't be counted present although he was there late. They even called me after I dropped him off to tell me that he wasn't in school. And he brought a doctor's note, so that should have been excused. Finally, the other two were from when he had bronchitis and got sent home early. I thought he was picked up at 12:30 that day, so not sure why it was even an absence. I guess the absence counted from when he went to the nurse at 11:30. But he has a note for that and the next day, which he must turn in. Hopefully they won't send a truant officer to the school.
4. My house. Nothing unusual. It is always a concern. After a year, we still have no window treatments. Maybe soon we will get them. Also new rugs, floors, air conditioner, kitchen and bathrooms. But no big deal. We love it anyway. Hopefully it will stand long enough for us to save the money to do these things.
5. My new blog. I don't know how to do one or even who reads it. Maybe I shouldn't tell anyone about it. That way I can write about whomever I want.